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Action to help children with hidden brain injury, UK

UK Health Minister Stephen Ladyman today launched an exemplar on acquired brain injury to show how the increasing number of children surviving meningitis, brain tumours and road traffic accidents can get better care. The exemplar illustrates ideal care which will ensure the extent of brain damage is fully explored by specialists and treatment is provided to meet new needs as they emerge as the child grows.

Stephen Ladyman was speaking at the National Service Framework for Children, Young People and Maternity Services Conference to launch Supporting Local Delivery , when he announced the publication of the new:

Exemplar on Acquired Brain Injury (ABI), Jack's Journey - which illustrates a coordinated, child-centred framework of services for patients, parents, carers and professionals. This is important due to the increasing number of children surviving ABI with greater disability or with disability that may not be immediately obvious but that becomes more apparent as the child grows. Jack's treatment after his accident shows the valuable contribution made to his acute and aftercare from a number of professionals working together to ensure the extent of his injuries is understood and treatment suitable for his changing needs as he grows.

Database to share emerging practice throughout children's services - designed to be a simple tool to illustrate key themes of the NSF, and inspire people working in children's, young people's and maternity services with emerging practice collected from local government and health services by members of the External Working Groups which developed the NSF.

Mapping services - which will collect information annually about services within health, education and social care, to enable local and national benchmarking to monitor progress in implementing the NSF.

Stephen Ladyman said

"At the heart of the National Service Framework is a fundamental change in thinking about health and social care services. Its aim is to bring about a cultural shift in the way we meet the needs of children, young people and pregnant women, so that high quality services are planned and delivered around the needs of children and their families. We want to ensure that services are personalised and not based on organisational structures or professional boundaries.

"Jack's journey shows how the NSF can be put into practice at the front line, and demonstrates the importance of partnership working between agencies and professionals and how they all work together to meet Jack's particular needs after his accident and to support his family. The care pathways developed for the NSF have proved a powerful tool in setting out the main themes of the NSF and showing what this may mean in practice. I visited a service for children with Chronic Fatigue Syndrome in Sutton earlier this week, and was delighted to see the vision that was set out in the NSF and the Chronic Fatigue Syndrome exemplar of integrated, patient focused, high quality care already being put into practice.

"If we are to change children's, young people's and maternity services, we must share the existing good practice and monitor progress. The projects I am launching today are key elements enabling us not only to celebrate existing good practice which can inspire others seeking to address the same issues, but also to help us see what progress we are making."

Minister for Children, Young People and Families Margaret Hodge said:

"The "Supporting Local delivery" document marks an important next step in the delivery of the National Service Framework for Children. It illustrates existing good practice for each one of us to learn from and utilise in our drive to safeguard and protect those children and young people who are most at risk.

The National Service Framework is a central and integral part of the Change for Children programme which seeks to improve a range of outcomes for children - from reducing infant mortality to increasing the uptake of sport. This is an ambitious agenda but I am convinced that by working together with a sense of shared responsibility among all professional boundaries, we will make dramatic progress in our drive to improve children services."

Related links
National service framework for children, young people and maternity services: Supporting local delivery

Notes to editor

The National Service Framework for Children, Young People and Maternity Services, launched in September of 2003, is a 10-year programme intended to stimulate long-term and sustained improvement in children's health. Setting standards for health and social services for children, young people and pregnant women, the NSF aims to ensure fair, high quality and integrated health and social care from pregnancy, right through to adulthood, more information can be found at the website above.

3. Supporting Local Delivery clearly identifies how the NSF for children, young people and maternity services fits into the Every Child Matters - Change for Children programme, and what this means for health organisations. The NSF is an integral part of the Change for Children programme that will, as it is implemented (by local authorities and other partners as well as health organisations) contribute to the achievement of the five outcomes for all children. The NSF embodies the Change for Children programme's commitment to changing services for children so that they are designed and delivered around the needs of the children and families using those services, not around the needs of organisations delivering them.The website www.everychildmatters.gov.uk was also launched on the 1 December. We envisage that this will be the central place for information about Children's Services in the future.

4. The new emerging practice database can be found at:
www.doh.gov.uk/children/nsfcasestudies.nsf

5. The National Child Health Service mapping project is based on the highly successful CAMHS mapping, now in its 3rd year, and will collect information annually about services within health, and at the interface between health and education and social care. Baseline data will be established with the publication of the first year's data, which is scheduled for June 2006. The CAMHS mapping project can be found at: www.camhsmapping.org.uk

6. For media enquiries only please contact Michelle Hinds at the Deparment of Health Media Centre on 020 7210 5375, or email on michelle.hinds@dh.gsi.gov.uk





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